Accessibility, acceptability, and adequacy of schizophrenia definition according to experts by experience: an icd-11 field study of patients and relative caregivers in Mexico

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dc.contributor.affiliationGlobal Mental Health Research Center, National Institute of Psychiatry, Mexico City, Mexico
dc.contributor.emailreberobles@hotmail.com (Rebeca Robles-García)
dc.creatorRobles-García, Rebecaes_ES
dc.creatorFresán, Anaes_ES
dc.creatorReal, Taniaes_ES
dc.creatorDomínguez-Martínez, Tecellies_ES
dc.creatorRascón, María Luisaes_ES
dc.creatorHernández, Omares_ES
dc.creatorMuñoz, Carolinaes_ES
dc.creatorGonzález, Alejandraes_ES
dc.creatorBrunet, Florianees_ES
dc.creatorBalaige, Antoinees_ES
dc.creatorAskevis-Leherpeux, Françoisees_ES
dc.creatorMedina-Mora, María Elenaes_ES
dc.creatorRoelandt, Jean-Luces_ES
dc.date2020
dc.date.accessioned2023-10-26T17:32:59Z
dc.date.accessioned2026-03-27T15:26:52Z
dc.date.available2023-10-26T17:32:59Z
dc.date.issued2022
dc.date.published2022
dc.descriptionBackground: Schizophrenia diagnosis is associated with special communication difficulties between clinicians, service users and caregivers, which may hinder the therapeutic alliance, treatment compliance, and rehabilitation. A clinically useful psychiatric nosology should improve communication between all final users. Aim: To evaluate the accessibility (vs. difficulty), acceptability (vs. related negative feelings) and adequacy (i.e. correspondence with the patient’s experience) of the terms proposed for ICD-11 schizophrenia diagnostic guidelines, according to 15 persons with a schizophrenia diagnosis and 15 caregivers of individuals with schizophrenia. Result: The ICD-11 terms that were most accessible for service users and caregivers were those most commonly experienced by patients (such as delusions and hallucinations). However, many less frequent features were not understood by a high percentage of participants, and most terms had negative connotations for both service users and caregivers, including the label for the “schizophrenia” disorder. Specific suggestions of more neutral, colloquial terms were proposed by participants. Discussion: The jargon in the current psychiatric classifications for schizophrenia has little heuristic value for service users and their caregivers in terms of accessibility or acceptability, highlighting the need for nosological systems’ co-development with experts by experience to change language that is confusing or unacceptable to them.es_ES
dc.formatPDFes_ES
dc.identifierJC58DIEP20es_ES
dc.identifier.doi10.1080/17522439.2020.1807591
dc.identifier.eissn1752-2447
dc.identifier.issn1752-2439
dc.identifier.organizacionInstituto Nacional de Psiquiatría Ramón de la Fuente Muñiz
dc.identifier.placeInglaterra
dc.identifier.urihttps://doi.org/10.1080/17522439.2020.1807591
dc.identifier.urihttps://repositorio.inprf.gob.mx/handle/123456789/7798
dc.language.isoenges_ES
dc.publisherRoutledgees_ES
dc.relation14(1):34-45
dc.relation.jnabreviadoPSYCHOSIS
dc.relation.journalPsychosis
dc.rightsAcceso Cerradoes_ES
dc.subject.kwSchizophrenia
dc.subject.kwICD-11
dc.subject.kwCommunication
dc.subject.kwDiagnosis
dc.subject.kwTherapeutic alliance
dc.titleAccessibility, acceptability, and adequacy of schizophrenia definition according to experts by experience: an icd-11 field study of patients and relative caregivers in Mexicoes_ES
dc.typeArtículoes_ES

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