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How service users and carers understand, perceive, rephrase, and communicate about "depressive episode" and "schizophrenia" diagnoses: an international participatory research

dc.creatorRoelandt, Jean-Luces_ES
dc.creatorBaleige, Antoinees_ES
dc.creatorKoenig, Mariees_ES
dc.creatorDemassiet, Vincentes_ES
dc.creatorAgoub, Mohamedes_ES
dc.creatorBarikova, Victoriaes_ES
dc.creatorBenmessaoud, Dalilaes_ES
dc.creatorBrunet, Florianees_ES
dc.creatorCarta, Mauro-Giovannies_ES
dc.creatorCastelpietra, Giulioes_ES
dc.creatorCrepaz-Keay, Davides_ES
dc.creatorDaumerie, Nicolases_ES
dc.creatorFontaine, Audreyes_ES
dc.creatorGrigutyte, Neringaes_ES
dc.creatorKishore, Jugales_ES
dc.creatorKiss, Martaes_ES
dc.creatorLaporta, Marces_ES
dc.creatorLayoussif, Elkhansaaes_ES
dc.creatorLimane, Youssoufes_ES
dc.creatorLopez, Marcelinoes_ES
dc.creatorMura, Gioiaes_ES
dc.creatorPelletier, Jean-Françoises_ES
dc.creatorRaharinivo, Mbolatianaes_ES
dc.creatorRicha, Samies_ES
dc.creatorRobles-Garcia, Rebeccaes_ES
dc.creatorStona, Anne-Clairees_ES
dc.creatorSkourteli, Marinaes_ES
dc.creatorThévenon, Catherinees_ES
dc.creatorTriantafyllou, Micheles_ES
dc.creatorVasilopoulos, Fotises_ES
dc.creatorWooley, Stéphaniees_ES
dc.creatorReed, Geofreyes_ES
dc.creatorGuernut, Mathildees_ES
dc.creatorSaxena, Shekhares_ES
dc.creatorAskevis-Leherpeux, Françoisees_ES
dc.date2020
dc.date.accessioned2023-08-31T18:10:56Z
dc.date.available2023-08-31T18:10:56Z
dc.date.issued2020
dc.identifierJC23DIEP20es_ES
dc.identifier.issn0933-7954
dc.identifier.urihttp://repositorio.inprf.gob.mx/handle/123456789/7748
dc.identifier.urihttps://doi.org/10.1007/s00127-020-01836-6
dc.identifier.urihttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7471108/
dc.descriptionBackground: For ICD-11, the WHO emphasized the clinical utility of communication and the need to involve service users and carers in the revision process. Aims: The objective was to assess whether medical vocabulary was accessible, which kinds of feelings it activated, whether and how users and carers would like to rephrase terms, and whether they used diagnosis to talk about mental health experiences. Method: An innovative protocol focused on two diagnoses (depressive episode and schizophrenia) was implemented in 15 different countries. The same issues were discussed with users and carers: understanding, feelings, rephrasing, and communication. Results: Most participants reported understanding the diagnoses, but associated them with negative feelings. While the negativity of "depressive episode" mostly came from the concept itself, that of "schizophrenia" was largely based on its social impact and stigmatization associated with "mental illness". When rephrasing "depressive episode", a majority kept the root "depress*", and suppressed the temporal dimension or renamed it. Almost no one suggested a reformulation based on "schizophrenia". Finally, when communicating, no one used the phrase "depressive episode". Some participants used words based on "depress", but no one mentioned "episode". Very few used "schizophrenia". Conclusion: Data revealed a gap between concepts and emotional and cognitive experiences. Both professional and experiential language and knowledge have to be considered as complementary. Consequently, the ICD should be co-constructed by professionals, service users, and carers. It should take the emotional component of language, and the diversity of linguistic and cultural contexts, into account.es_ES
dc.formatPDFes_ES
dc.language.isoenges_ES
dc.publisherSpringer Internationales_ES
dc.relation55(9):1201-1213
dc.rightsAcceso Cerradoes_ES
dc.titleHow service users and carers understand, perceive, rephrase, and communicate about "depressive episode" and "schizophrenia" diagnoses: an international participatory researches_ES
dc.typeArtículoes_ES
dc.contributor.affiliationEPSM Lille-Métropole, French WHO CC, Armentières, France
dc.contributor.emailjroelandt@epsm-lille-metropole.fr (Jean-Luc Roelandt)
dc.relation.jnabreviadoSOC PSYCHIATRY PSYCHIATR EPIDEMIOL
dc.relation.journalSocial Psychiatry and Psychiatric Epidemiology
dc.identifier.placeAlemania
dc.date.published2020
dc.identifier.organizacionInstituto Nacional de Psiquiatría Ramón de la Fuente Muñiz
dc.identifier.eissn1433-9285
dc.identifier.doi10.1007/s00127-020-01836-6
dc.subject.kwInternational Classifcation of Diseases
dc.subject.kwClinical utility
dc.subject.kwCommunication
dc.subject.kwParticipatory research
dc.subject.kwService users
dc.subject.kwCarers


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