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Illness trajectories in Mexican children with juvenile idiopathic arthritis and their parents

dc.creatorPeláez-Ballestas, I.
dc.creatorRomero-Mendoza, M.
dc.creatorRamos-Lira, L.
dc.creatorCaballero, R.
dc.creatorHernández-Garduño, A.
dc.creatorBurgos-Vargas, R.
dc.date.accessioned2017-06-29T04:40:18Z
dc.date.available2017-06-29T04:40:18Z
dc.date.issued2006es_ES
dc.identifier504es_ES
dc.identifier.issn1462-0324es_ES
dc.identifier.urihttp://repositorio.inprf.gob.mx/handle/123456789/5191
dc.identifier.urihttps://doi.org/10.1093/rheumatology/kel122es_ES
dc.language.isoenges_ES
dc.publisherOXFORD UNIV PRESS, GREAT CLARENDON ST, OXFORD OX2 6DP, ENGLANDes_ES
dc.relation45 (11) 1399-1403 p.es_ES
dc.relationversión del editores_ES
dc.rightsacceso cerradoes_ES
dc.titleIllness trajectories in Mexican children with juvenile idiopathic arthritis and their parentses_ES
dc.typearticlees_ES
dc.contributor.affiliationHosp Gen Mexico City, Dept Rheumatol, Mexico City 06726, DF, Mexicoes_ES
dc.contributor.emailburgosv@attglobal.netes_ES
dc.relation.jnabreviadoRHEUMATOLOGYes_ES
dc.relation.journalRheumatologyes_ES
dc.identifier.placeOxfordes_ES
dc.date.published2006es_ES
dc.identifier.organizacionInstituto Nacional de Psiquiatría Ramón de la Fuente Muñizes_ES
dc.identifier.doi10.1093/rheumatology/ke1122   es_ES
dc.description.monthNoves_ES
dc.description.abstractotrodiomaBackground. We hypothesize that the qualitative approach of socio-cultural aspects in children with juvenile idiopathic arthritis (JIA) and their parents would improve the understanding of their illness. Objective. To explain the phenomenon of experiencing JIA within a specific cultural context. Methods. The theoretical position of this research was based on the substantive theories of suffering, explanatory models and illness experience. Its design was that of qualitative field, and its analysis followed the interpretative grounded theory methodology. Data were collected by in-depth interviews and notes; tape recordings were transcribed verbatim, read and imported into the ATLAS/ti((R)) 4.2 software. Data conceptualization, categorization and interpretation were based on the constant comparison method. Results. A total of 16 adults and six children from 10 families were interviewed. 'Pilgrimage' (metaphorically referred by some of the parents) was a major code in the study that reflected the religious reference to the trajectory of pain, faith and hope. For children, pilgrimage was conformed by immediate concepts; for parents, by historical and immediate experiences influenced by JIA subtype. Pilgrimage was consistent with the model of the illness trajectory theory, which conceptually relates to the idea that the course of chronic diseases is variable and modifiable throughout time. Conclusion. The qualitative approach of JIA provides wide and deep information on the perception that children and parents have about the disease. The illness trajectory theory corresponds to pilgrimage, the theoretical model for JIA in this study.es_ES
dc.subject.meshmRheumatoid arthritises_ES
dc.subject.meshmCarees_ES
dc.subject.meshmAnthropologyes_ES
dc.subject.meshmExperiencees_ES
dc.subject.meshmQuality of lifees_ES
dc.subject.kwArtritis juveniles_ES
dc.subject.kwTrayectoria de la enfermedades_ES
dc.subject.kwInvestigación cualitativaes_ES
dc.subject.kwCalidad de vidaes_ES
dc.subject.kwNarrativases_ES
dc.subject.kwAntropologíaes_ES
dc.subject.koJuvenile arthritises_ES
dc.subject.koQualitative researches_ES
dc.subject.koIllness trajectoryes_ES
dc.subject.koQuality of lifees_ES
dc.subject.koNarrativeses_ES
dc.subject.koAnthropologyes_ES


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